Salford Fibromyalgia Support Group
NEW HELPLINE OPENING TIMES
As you will no doubt be aware, the group is run solely by volunteer members, all of whom are themselves Fibromyalgia sufferers.
We are pleased to be able to continue the local helpline service, and this will now be available midweek, Tuesday - Thursday from 10am until 4pm. There is also the facility to leave a message if necessary, and someone will respond to your query as soon as possible.
The group are working with a company called "TIYGA Health" - TIYGA stands for "time is your greatest asset".
TIYGA are developing apps to enable people to easily develop a diary and record of symptoms which they could share with health professionals who need information about their condition and how it impacts on their daily lives.
If you are interested in being involved in this project, or would like any more information, please contact us via the contact tab above.
We are involved in a number of research projects and are always looking for volunteers to take part, so please let us know if you are interested.
The group continues to meet on a monthly basis at Eccles Gateway Centre.
In 2019, all meetings will take place on a Thursday, at the Eccles Gateway, from 1-3pm on the following dates :-
Thursday 15th August 2019
Thursday 19th September 2019
Thursday 17th October 2019
Thursday 21st November 2019
Thursday 19th December 2019
Alternatively there is a meeting on the 1st Thursday of the month at the Energise Centre, Salford.
If you haven't yet been to a meeting, please do come along - you will be most welcome!
LOOKING BACK 2017 - 2018
The group have had another busy year and we have welcomed many new members we have also had visits from some very interesting speakers.
Activities have included :-
From April through to June we participated in Professor Anthony Jones production of "Pain the Brain and a Little Bit of Magic" which took us to many venues across the North West, spreading knowledge of Fibromyalgia to medical professionals and members of the public.
Group members have had the opportunity to take part in various research programmes at Manchester University which are ongoing.
In April John McChrystal again completed a 300 mile cycle ride to raise funds for the group and we are again most grateful for his support.
We are delighted to confirm that Bioclinics have become the sponsors of the group and would like to take this opportunity to thank them for all their support thus far, and we look forward to continue working with them.
On 12th May International Fibromyalgia Awareness Day, we had an exhibition stand at Eccles Gateway Centre.
In July, we had an awareness stand and gave out literature at the Morrisons Supermarket in Eccles, and we thank them for giving us the opportunity to raise awareness amongst their customers.
For National Fibromyalgia Awareness week we had a stall at the Eccles Festival which was very successful. This has now become an annual event in the group's calendar.
In October we helped FMAUK at a Highways England event in Manchester, "Healthy Workplaces for All". We managed to raise awareness of Fibromyalgia and a number of group members took part in supporting the event.
FUNDRAISING 2017 - 2018
We've been fortunate to be the beneficiaries of two sponsored events during the year - last September two of our group members completed a sponsored swim as part of our activities to mark the National Fibromyalgia Awareness Week.
Also, the husband of one of our group members carried out a sponsored cycle ride along the Way of the Roses route.
Both events raised much needed funds for the group and we are extremely grateful to all concerned.